A Little Tea POTSie

Hi there! My name is Blythe, and I'm a eighteen-year-old with Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome. I also have chronic headaches, undiagnosed and mostly ignored joint problems, insomnia, anxiety, and dysthymia. This is my health-only blog; my main is aceprouvaire. I also have a fashion blog called amiafairyprincessyet, which is by definition a disabled fashion blog.

hey POTSies—do any of you guys feel super sick to your stomach in the mornings?

it’s like okay one time I was on the wrong dose of birth control and it basically gave me morning sickness

I’m on the right dose now but for the past few days I’ve been feeling like that every morning

question mark?

marchcouldbedarker:

marchcouldbedarker:

Does anyone have any resources for unionizing disabled labor?

I’m with an activist group at my college and we found out that disabled workers, which make up around a 1/3 of the workforce here, are being paid less than minimum wage (cause that’s legal apparently).

I want to see how/if we can fight that.

Pass this around, yeah?

(via nothing-rhymes-with-grantaire)

spooniestrong:

wheeliewifee:

Hey, folks, I need your help.

I’m developing serious new symptoms, and I’m becoming less and less functional.
I have only three weeks until finals, and I’m working on my internship, so I don’t have time for this nonsense!

I stopped into the school clinic today, and they pretty much just rolled their eyes and told me to go to the hospital. I can’t afford to add to my stack of unpaid ER bills, and we all know the high quality of care I’d receive there…

Basically, I need to see my regular doctor.

I haven’t gone in nearly a year, because I am uninsured, and I can’t afford it.

It’s a $75 payment up front (not including labs), and right now rent is due on Tuesday, and I’ve received 48-hour shut off notices for our power, gas, and phone. So I cannot even afford to pay my basic necessity bills, let alone “splurge” on a doctor’s visit.

D is working a lot of odd jobs and tattooing to earn money on the side, but our little shop has taken a big dip in regular sales, so it’s just not enough to cover all our bases.

If you can help, there’s a donate button on the bottom right side of this blog, or you can visit my lovely little store here:

https://www.etsy.com/shop/ThePaperPoppyStore

Please signal boost. I’m sick, I’m scared, I don’t know what to do…

Signal boosting — please help support fellow Spoonies!

(via potsiediary)

tarargh:

hey yall i made a post a while ago abt my medical bills and how my family and i would likely have trouble paying for it (it hadnt come in the mail yet back then), and then a few weeks (?) afterwards i learned that we need to pay $2000 worth of taxes

well, we finally got a hold of the total for my ER stay today and my original guesstimate of $900 based off my first ER stay ended up being WAY off. its roughly $1400. and literally all of us are at our breaking point. i honest to god dont know what to do

please please if you can send even a dollar our way on paypal to help us pay at least some of it off id be extremely grateful. if you cant donate anything then i would also appreciate it if you could reblog

(if the paypal link isnt working, theres a donation button on my blog’s sidebar as well)

(via crevangrietje)

Click here to support Medically complex chest surgery needed! by Kye Weber

wheeliewifee:

audreydegrey:

Okay tumblr, here is a cause! My friend needs top surgery for several reasons, namely for his medical well being and for gender dysmorphia. PLEASE REBLOG. We all know this is expensive surgery and if you can donate five dollars, he will be five dollars closer to his goal. If you can’t donate: reblog, post it to facebook and twitter and get the word out there so other kindhearted people can donate. 

SIGNAL BOOST

theconcealedweapon:

Abled people complain about disabled people needing accommodations, because “in the real world there are no accommodations”.

But abled people receive accommodations all the time. Cars are an accommodation for those who can’t run a steady speed of 60 mph. Stairs are an accommodation for those who can’t jump from one story to the next. Phones are an accommodation for those who can’t communicate telepathically. Calculators are an accommodation for those who can’t do large math problems in their head. Lights are an accommodation for those who can’t see in the dark. Stoves are an accommodation for those who can’t heat things with their eyes. Clocks are an accommodation for those who can’t tell what time it is just by the position of the sun. Jackets are an accommodation for those who are susceptible to frostbite when it’s cold. 

Abled people receive accommodations all the time, but since it’s considered socially acceptable to need those accommodations, they’re not considered accommodations. But imagine if you lived in a world where you needed those accommodations but most people didn’t. That’s what it feels like to be disabled.

(via vangoghsdaughter)