A Little Tea POTSie

Hi there! My name is Blythe, and I'm a eighteen-year-old with Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome. I also have chronic headaches, Benign Hypermobility Syndrome, insomnia, anxiety, and dysthymia. This is my health-only blog; my main is aceprouvaire. I also have a fashion blog called amiafairyprincessyet, which is by definition a disabled fashion blog.

Important!!

littleredridingscarf:

Guys the petition to recognize Fibromyalgia as a disability ends this month and it needs 97.5 K signatures still please sign this petition its extremely important. Fibromyalgia is ‘a common syndrome in which a person has long-term, body-wide pain and tenderness in the joints, muscles, tendons, and other soft tissues. Fibromyalgia has also been linked to fatigue, sleep problems, headaches, depression, and anxiety

(via lammergeist)

Flaredown - Decode Your Chronic Illness

spookyautisticcombeferre:

empyreansea:

spookyjealous:

HOLY FUCK SPOONIES LOOK AT THIS
29 DAYS LEFT LETS FUND THIS!

Flaredown is a web site and mobile app that lets your track your chronic illness and figure out triggers so you can reduce your flares before they ever begin.

It’s a spoonie-centric approach to figuring out what works. You can track your illness, and bring your data into your doctor. You can talk with other spoonies who have your condition and see what works for them. You can talk about drugs and see if the side effects are worth the benefits of medication.

it’s banding together in spite of illnesses that seek to isolate us.

it’s bringing light to symptoms that are not understood by doctors.

literally amazing

if you are not chronically ill/disabled and can spare the cash PLEASE fund this there literally are no symptom trackers out there (that I have found) that cater to people with chronic illness other than maybe crohn’s and there especially aren’t ones designed to connect the chronically ill and that is so important there is so much that even a great doctor can’t understand and the more you can connect to people with similar symptoms the better. I’m specifically addressing this to healthy people because those of us who need this most rarely have money to spare between treatments that may or may not help, testing and retesting, often being unable to work, lawyers fees for trying to get disability, special dietary needs (esp if those needs are considered a fad diet and the price gets jacked up and yes I am looking at you gluten-free stuff), assistive technology, transportation due to inability to drive, the list goes on but I’m going to stop here.

this app is so important and it is desperately needed bc seriously have you ever tried setting up a custom spreadsheet for this stuff it is hard as fuck and there aren’t templates for it and spreadsheets are less than ideal no matter how you set them up

(via lammergeist)

Click here to support Libbi's Life Fund

jeff-the-god-of-biscuits:

I really wish I didn’t have to ask for help, but I do, so here it is.

(via serial-iller)

larincesa:

Stop posting comics like “what if we treated mental illnesses like physical ones?” in order to highlight the struggles faced by mentally ill folk.

People do invalidate those of us with chronic, physical illnesses, on a daily basis.

Don’t erase our struggles in order to prove your point.

(via sp0okie)

aninfinityofwarmth:

aninfinityofwarmth:

aninfinityofwarmth:

As most of you know, I have been in a long distance relationship with my boyfriend Alex for over a year now. We both believe it is time for me to relocate to Cincinnati where I will get the best care possible both emotionally and physically. In May of 2013 after many years of suffering I was diagnosed with Hashimoto’s Disease. After a FNA biopsy it was determined that I must undergo a totally thyroidectomy due to the threat of thyroid cancer. After my thyroidectomy I became even more ill. Since July 2013 I have been diagnosed with fibromyalgia, endometriosis, HS, and CFS. In Cincinnati I will be able to receive the best care possible and be with the man I love. But I need your help. I have created an Etsy Shop.

The money I make from my hand crafted items as seen above, is going straight to my moving fund. Please think about taking a look. If you don’t see a hat in a color you would like, custom orders can be done with a simple message. If you can’t afford to purchase anything or just don’t feel comfortable with it, please think about reblogging this post so others can potentially help. It would really mean the world to me. I’ve also started a GoFundMe which you can access
here.
Every little bit helps. Even simply reblogging this post. It would mean the world to me to get any help that I can.

I also take custom hat orders if you don’t see a color you want!

And if you can’t afford to donate or purchase an item from my etsy, please just reblog this post. It would mean so much to me.

TUMBLR USERS: If you use the promotional code “TUMBLR” you’ll receive 25% off when you spend $10.00 or more in my shop. You guys have been so supportive. I appreciate and love all of you so much.

(via ghost-ofachronicallyillsoul)

Hi I’m Blythe and this is jackass

*drinks caffeinated tea*

to physically abled people, from a guy in a wheelchair

cardboardghoul:

let me spell this out for you

i don’t expect your houses to be accessible. i wish i could make that assumption, but i know that most houses are not built to accommodate wheelchairs. i don’t expect you to make your house accessible just so i can visit.

i do expect you to know this. i do expect you to think about whether i can get in your house before you invite me. i expect you not to look surprised when i come to your house at your invitation and then can’t get up your front steps.

i do expect you, if you’re organising an event that you’re inviting me to, to think about whether the venue is accessible. i don’t necessarily expect you to scout the place out in person, but i do expect you at least to check the website. if this is a professional event, your failure to do this reflects negatively upon your business ethics. if it’s a personal event, it reflects negatively upon our friendship.

what i need you to understand is that the first thing wheelchair users lose is the ability to be spontaneous. we cannot go out on a whim, assuming we can get in whichever pub or bar or club we want to. we cannot jump on a train, or on a bus, without thinking about it first. we have to think about everything

please take some of that burden off us, when you can.

(via lammergeist)

Queer Disabled Lady Needs Help Desperately!

barebackbearyak:

The long and short of it is that I am a disabled person who can’t get disability benefits, and I also can’t get a drivers license or a job because of my disability. 

If anybody can donate to help me keep going until I can get back on my feet, it would be greatly appreciated. Even if you can’t donate, please spread the word so hopefully I can find a sympathetic ear. 

Please send any donations to my PayPal vaultjericho@gmail.com

For the full story/explanation of my situation and disability, please read under the cut

Read More

Flaredown - Decode Your Chronic Illness

spookyjealous:

HOLY FUCK SPOONIES LOOK AT THIS
29 DAYS LEFT LETS FUND THIS!

Flaredown is a web site and mobile app that lets your track your chronic illness and figure out triggers so you can reduce your flares before they ever begin.

It’s a spoonie-centric approach to figuring out what works. You can track your illness, and bring your data into your doctor. You can talk with other spoonies who have your condition and see what works for them. You can talk about drugs and see if the side effects are worth the benefits of medication.

it’s banding together in spite of illnesses that seek to isolate us.

it’s bringing light to symptoms that are not understood by doctors.

(via noctiluca-scintillans)