tdubcrazy asked: Hi my name is Taylor i am 16 and i have dysautonomia /pots for 4 years now and it has been just horrible for the past year i was wondering what u take for pain or tiredness my doctor is Dr Banks and he isnt doing anything so i need help anything would help!
Well I also go to Dr. Banks and he was incredibly helpful for me, so I dunno what’s going on with your situation.
I don’t really take anything for tiredness. There aren’t really any medications for that, and some of the medications I’m on may actually make my fatigue worse. The only medication I know of that works for tiredness in POTS is droxidopa, which Dr. Banks can’t get ahold of until September. I know this because I spent hours wrangling his office staff (who do kinda suck) only to have the appointment fall through three days beforehand because they can’t even get the medication. You may be able to tell that I’m still bitter.
For pain… Okay so there is something weird going on with me and pain. Either I have a high pain threshold and am used to pain, or I’m resistant to low-level pain medications. It takes 800 mg of Advil to do anything to me, and even then it’s pretty slight. I take Aleve every day to reduce inflammation in my shitty hip, which indirectly reduces my pain. But when I’m actually in pain I have to take prescription painkillers—my drug of choice is Tramadol. It’s a controlled substance because it’s a little bit addictive (I don’t take it every day) and it’s basically the lowest level of scary painkiller you can get. I really like it and I hope I don’t ever develop a resistance, because I can actually function while I’m on it.