A Little Tea POTSie

Hi there! My name is Blythe, and I'm a eighteen-year-old with Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome. I also have chronic headaches, Benign Hypermobility Syndrome, insomnia, anxiety, and dysthymia. This is my health-only blog; my main is aceprouvaire. I also have a fashion blog called amiafairyprincessyet, which is by definition a disabled fashion blog.

charliexxx:

So. I had no idea about this app until I went into my doctor and he told me about it. 

LISTEN UP. THIS APP. THIS SHIT RIGHT HERE IS SERIOUSLY A BLESSING. ESPECIALLY TO ANYONE WITH FINANCIAL PROBLEMS (which is kind of everyone now). THIS IS NOT INSURANCE THOUGH. BUT IT WILL HELP YOU OUT. DOWNLOAD THIS APP RIGHT NOW. NO. STOP READING. DOWNLOAD IT

This app allows you to input the prescription you have, select your dose, and then find a place near you (or your own pharmacy) with the cheapest price. Then you click “get code/coupon/discount card,” show that to the pharmacist, and THERE YOU GO. SAVING YOU SOME CASH TO GET YOURSELF A WELL DESERVED DRINK, CANDY BAR, DATE MONEY, SEX TOY CASH, OR GO BUY YOURSELF A HAMSTER AND NAME HIM STARLORD WITH THE EXTRA MONEY

No, but in all seriousness. This app is saving my ass right now. 

I’m Trans* and have Fibromyalgia, and this is really making a difference already. I hope this helps out other people. We all know it fucking sucks to have to pay this much for the medication we need to function in life. 

(via technicolorrelays)

scootinfrooti:

hey if you have google chrome and you have dyslexia or problems with reading comprehension, the dyslexie extension is really great and is also free in the chrome web store. it also has the option to make text larger or smaller, a+, do recommend

(via castieleverdean)

Linda Gauthier’s last mammogram was 8 years ago. She says she was told it was because she can’t stand up to reach the machines.

When she called the Health Ministry to complain, she says she was told that all the machines in Quebec are capable of lowering to sitting height.

Gauthier is president of RAPLIQ, she says this is symptomatic of widespread discrimination towards the disabled within the healthcare system.

Wheelchair using women denied mammograms

It’s wrong either way, but somehow harder to fathom that the machines are wheelchair-accessible but wheelchair users are still turned away from potentially life-saving medical screening.

(Source: disabilityhistory)

disabilityfashionproject:

A lot of people judge me; they think I’m pretty fucking weird. When I go on a photo shoot, the other industry models don’t know what to make of me. They’re usually like, ‘What the fuck is this?’ It’s difficult for me in the fashion world; people think I’m a gimmick and that I’m just being exploited for my differences. My interaction with people is stressful. We’re all mirrors to each other, and I think a lot of people tend to project their bullshit on me. I have to remember that when someone does judge me in a certain way, it’s just a reflection of their own issues. It just sucks that I have to be the one that receives it…. 
Read more at http://stylelikeu.com/themes-2/body-image/melanie-gaydos/#z0RfLqqGqQGpDHi7.99

Melanie Gaydos for StyleLikeU (TW for brief discussions of suicide and abuse)

IMPORTANT

transdimensionalboundaries:

Hi guys, I know that lately I have been asking kindly for donations for my own medical needs. But right now a family emergency came up and I would much rather see money go toward that. 

image

This is my Aunt Tanya and her Husband Von. Aunt Tanya just got diagnosed with small cell aggressive lung cancer. It’s in the early stages so if she gets treatment NOW she can go into remission. But Unfortunately she has no medical insurance and the bills are racking up. I am halting my normal savings to go toward her medical costs because let’s face it. My top surgery can wait. Tanya can’t.  

Uncle Von just lost his little brother over this last Thanksgiving (in a semi truck accident). Please let’s do all that we can to ensure that cancer doesn’t take his wife from him too. I have donated $50 to her so far, rather then putting it in saving. 

Here is a flyer that her children made for her.

image

You can contribute to her medical costs for surgery here

She is a really kind and giving soul. Please help by donating and/or sharing this blog post. 

andreashettle:

ragingpeacock:

Is funny when doctors and other peeps act like my problem is that I’m obsessed w/ my disability. Um no. You have it backwards. The problem is I HAVE to be cuz it is a constant problem.

I’m deaf. About 25 years ago, I was working for a little while as a classroom aide at a program that worked with deaf children with multiple disabilities. All the teachers and other classroom aides were hearing, but they all could sign.  Not at native signing level, but enough to carry on a basic conversation.

So, one evening, all us adults bring all the kids to a special one-night camping trip. All the kids are put to sleep, which frees up the adults to get into a circle and have some fun to ourselves for a while. People start talking, except they were forgetting to sign.  So I reminded them to please sign so I could understand them.  One of them told me that, no, they weren’t going to sign because this was our night to have fun and not have to think about communication.

So no one signed all night. They talked, they laughed, they had fun. I sat, feeling lost and cut off and betrayed. I remember wishing I had had the nerve to say, “No, what you mean is, you want a night in which everyone EXCEPT ME gets to not think about communication.”

I think sometimes when non-disabled people insist that we are too obsessed with our disability, what they REALLY mean is, “I wish you would stop reminding me that I have a shared responsibility as a fellow member of society to proactively ensure that we all have an opportunity to be engaged in society.  I wish you would just pretend to not have a disability so I can pretend that I don’t have to do anything to enable you to do the same things the rest of us are doing.”

The luxury of not needing to think about disability in a society that is designed to lock us on the cold outside is a non-disabled privilege. 

(via hydrogyne)

optimisticduelist:

autisticqueermihashi:

piratecoves:

poopflow:

people who dry swallow pills go hard as hell and should not be fucked with

i used to dry swallow pills until a searing pain developed in my throat and chest and with the help of the world wide web i found out it burned a hole in my fucking throat please take your pills with water kiddies it’s worth it

HOLY SHIT OKAY

UM FUCKIN WOW THATS NICE TO KNOW I GUESS

(via taliesem)

notthatkindofchronic:

flaresof-fibro:

anyone use the pill constantly to prevent getting your period? if so -

Read More

That’s how I stopped my period… In 2009.
Haven’t had one since. Yeah boi.

It’s been three years, I’m pretty much on the lowest dose possible, and my body has never “rebelled”.  I seriously have not had a single period in three years.  I was considering having one this summer (because it knocks me out for two weeks) but I got distracted.