A Little Tea POTSie

Hi there! My name is Blythe, and I'm a eighteen-year-old with Dysautonomia, specifically Postural Orthostatic Tachycardia Syndrome. I also have chronic headaches, Benign Hypermobility Syndrome, insomnia, anxiety, and dysthymia. This is my health-only blog; my main is aceprouvaire. I also have a fashion blog called amiafairyprincessyet, which is by definition a disabled fashion blog.

Think Twice Before Confronting Drivers in Handicapped Spots

i-need-that-seat:

YOU GUYS

TODAY’S DEAR ABBY

GIVES A SHOUT-OUT TO

INVISIBLE DISABILITIESSSSSSSS.

Beware when reading the comments - some are awful and full of trolls, but some are stories and opinions from people who deserve to be heard - people who have been harassed in parking lots because they didn’t “look the part.” MIND YA OWN BUSINESS, FOOLS. If I’ve got a tag up and I’m not limping or in a wheelchair, that doesn’t mean I’m not in goddamn agony.

(via fogbloggger)

ifihavethespoons:

i feel like there needs to be a word for accidentally wasting spoons. like if you start a task that shouldn’t be that bad but it turns into a huge energy waster.

like you decide to walk somewhere instead of taking public transportation, and there’s a sudden street closing that makes you have to walk way out of your way.

a mis-spoon? a spooncident?

an accidental spooning? no, that sounds wrong.

any ideas?

(via heyatleastitsnotcancer)

Blehhh my stomach hurts

stoneroses84:

spoonie-living:

Similar in form to Emergen-C, Nuun Active Hydration drink tablets are great for anyone looking to increase their salt intake (shout-out to my POTSie readers!). I ran into a discussion about this product on a neat new Facebook group called *Positive only* POTS Support group :), and as a POTSie myself, I decided to check it out.

For those of you sick of downing bottle after bottle of sugary Powerade or Gatorade and watching your tongue turn blue (or green, or pink), this is a great alternative with no sugar. It still contains all the nutrients you’re looking for, and in significantly higher quantities. Since it’s in little tubes (rather than big tubs of powder) it’s a lot easier to carry around when you’re on the go. And finally, it tastes just fine—maybe like a watered-down Emergen-C. Rather than a big bottle of sugar, it’s more like flavored water.

Let’s do a quick breakdown of a standard 500ml/16oz-ish serving:

Gatorade (17 oz @ 93¢ when purchased as powder in 8-quart bulk

Calories: 120

Sodium: 230mg

Potassium: 65mg

Sugars: 29g

Powerade (16 oz @ 55¢ when purchased as powder in 7.5-gallon bulk)

Calories: 100

Sodium: 200mg

Potassium: 70mg

Sugars: 14g

Nuun (1 full tablet=16oz @ 37¢)

Calories: <8

Sodium: 360mg

Potassium: 100mg

Sugars: 0g

Magnesium: 25mg

Calcium: 12.5mg

Vitamin C: 12.5mg

Vitamin B2: 500mcg

Comparison shopping accomplished, with Nuun as the winner! It’s cheaper and has more of what you’re looking for, so definitely check it out.

Spreading the word for potsies! Great for in your handbag, especially if you live in a country where the “add to water sachets” aren’t widely available.

(via wheeliewifee)

IT HAPPENED TO ME: A Fibromyalgia Misdiagnosis Made Me Sick For A Decade

fibrofrog:

heatherpattern:

OH HEY LOOK ANOTHER MISDIAGNOSIS STORY

For those of you who’s doctors or naturopaths have found high levels of metals in you through testing you might find this helpful  

megasumpex:

shout out to the kids and adults who have memory problems, who get yelled and screamed at by their families for not remembering things

(via heyatleastitsnotcancer)

  • Doctor: Come back in right away if that happens again.
  • Me: Hey that thing is happening again.
  • Doctor: Okay the next available appointment is in a week and a half.
carolxdanvers:

So here’s the thing.
I need oral surgery, badly. I have needed it for years, but in the past six months, the teeth have just gotten worse, and the pain is worse and more frequent.
The estimate for the cost of all services to be rendered is over two thousand 4600 dollars, even with the insurance plan I was able to purchase last year. We don’t have a lot of money, and things keep happening. My mom just had major surgery a month ago. She can’t even sleep in her bed yet, she’s having to sleep in a recliner, and that’s costing us, too.
Long story short, I need surgery badly and I could really use some help. I never wanted to make this post, but I’m pretty desperate. 
If you can, please consider sparing a few dollars. I have a donation button on my blog, or you can donate here. Signal boosts are always appreciated.
UPDATE: You may have seen this post before, without the image above, saying that the cost was around two thousand dollars. I picked up a copy of the payment plan today, and I apparently mis-remembered. The actual out-of-pocket cost is $4638.
If everyone could please circulate this version of the post instead of the other one, I’d be very grateful. Sorry, this is completely on me.

carolxdanvers:

So here’s the thing.

I need oral surgery, badly. I have needed it for years, but in the past six months, the teeth have just gotten worse, and the pain is worse and more frequent.

The estimate for the cost of all services to be rendered is over two thousand 4600 dollars, even with the insurance plan I was able to purchase last year. We don’t have a lot of money, and things keep happening. My mom just had major surgery a month ago. She can’t even sleep in her bed yet, she’s having to sleep in a recliner, and that’s costing us, too.

Long story short, I need surgery badly and I could really use some help. I never wanted to make this post, but I’m pretty desperate. 

If you can, please consider sparing a few dollars. I have a donation button on my blog, or you can donate here. Signal boosts are always appreciated.

UPDATE: You may have seen this post before, without the image above, saying that the cost was around two thousand dollars. I picked up a copy of the payment plan today, and I apparently mis-remembered. The actual out-of-pocket cost is $4638.

If everyone could please circulate this version of the post instead of the other one, I’d be very grateful. Sorry, this is completely on me.